Tony Bryant, a 61-year-old former firefighter and rugby coach, is battling Short Telomere Syndrome — a rare genetic disorder that accelerates cellular aging, devastating his lungs and liver. Diagnosed in 2023, he now relies on oxygen 24/7 and struggles with advanced pulmonary fibrosis. His daughter Sophia shares the emotional toll as they race against time, exploring experimental treatments like Nerandomilast and fundraising for critical care — all while fearing the inherited risk for their children.
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