When Eri's son Rio was born, she immediately knew something wasn't right. Having seen her brother live with Craniosynostosis, she recognised the signs that others missed. What followed was a journey of multiple brain surgeries, months of uncertainty, and learning to trust her instincts when medical professionals weren't convinced.
In this emotional episode of We're Not Your Typical, Eri shares Rio's story, from his diagnosis at birth to undergoing life-changing surgery at Great Ormond Street Hospital, and why parents should never ignore their gut feeling.
In this episode:
🧠 What Craniosynostosis is and how it affects brain development
🏥 Rio's first surgery at just four months old
⚠️ How routine eye tests revealed dangerous pressure on his brain
💙 The emotional reality of watching your child undergo brain surgery twice
👶 The signs every parent should know to look out for
🙏 Why trusting your instincts can save your child's life
✨ Life after surgery and Rio's recovery journey
If you're a parent worried about your child's development, head shape, or you've experienced a rare diagnosis, this episode is filled with hope, awareness, and practical advice.
💬 Have you experienced something similar? Share your story in the comments to help raise awareness for other families.
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